Saturday, March 5, 2016

Wait for Me

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"Wait for me!" I called to my daughter as we headed to to bus stop.  Just like that, just like always, she did.  I watched her bea...
Sunday, February 14, 2016

One Thing I Wish We Within the Disability Community Would Stop Doing Today

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Every day I turn on my computer I am met with the same thing.  In one form or another someone is presenting a blog aimed at telling peopl...
Saturday, September 26, 2015

Mitochondrial Disease; It Isn't All About Suffering

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It is no secret that Mitochondrial Disease has brought a lot of trauma and suffering to our lives, the countless amounts of; hospital s...
Tuesday, July 21, 2015

What Does Our Daughter's Autism Look Like?

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She's at a movie theater, she is sitting next to me, legs folded "cris-cross-applesauce." She keeps her eyes peeled on the scr...
Monday, July 6, 2015

How this Special Needs Momma finds her Peace

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They approach her bed, something is fiercely wrong.  Her alarms sound quicker and louder, sounds I have never heard before; noises I cannot...
Wednesday, June 3, 2015

When the Doctor Told Us We Would Outlive Our Daughter

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There are few times in life that I can honestly say I nearly lost all faith; faith in everything, time, logic, even God.  Having no faith i...
Monday, January 26, 2015

Our Little Miracle

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We loved you long before we ever knew you.  From those early wishes and hopes for what your untold future would be, to the first beats of yo...